Hello and Welcome to Neurotalk, you will meet many great and supportive people here!!

I'm sorry to hear that your son suffers from Dystonia at such a young age , I really hope you can find something that can help ease some of his problems soon. I also suffer from Dystonia, although mine is as a result of a chronic pain condition (Complex Regional Pain Syndrome), I developed it when I was 12 years old and am now 13. The areas that are currently affected by the Dystonia and CRPS are my left leg and right arm. I have almost 2 "types" of Dystonia's, my leg is constantly locked rigid out to the side in eversion and my arm has a Dystonia that comes and goes whenever it feels like it!

I have tried so many medications to try and ease the Dystonia but nothing has worked to this point and we are now looking at going down the Botox route as we have read lots of articles that say that it can be useful (although we aren't sure if this could affect my CRPS). My Doctors and PT's also want to cast my leg from my hip downwards to try and stop the rotation.

If you ever want to talk, please know that I am here for you and that you are more than welcome to PM me.

Take care and all my best to you and your son.
Alison