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Old 12-01-2008, 08:23 PM
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JoeMac JoeMac is offline
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Location: Erie, Pa
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JoeMac JoeMac is offline
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JoeMac's Avatar
 
Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
15 yr Member
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Hi Gazelle,

I am having a "Cog fog" day here and cannot follow what you wrote, sorry.......

I DO want to wish you luck with doc #3, you will be in my prayers also.


Joe

Quote:
Originally Posted by Gazelle View Post
Yep. After Dr. Researcher and Dr. I've Been Recruited by Another Facility, I'm going to see Dr. Unknown on Wednesday. And I'm not excited.

Dr. Researcher said "oh, transverse myelitis only and I'm a consult only."
Dr. Recruited said, "transverse myelitis and clinically isolated syndrome can't be your neuro because I've been recruited."

I'm fully expecting Dr. Unknown, allegedly my "treating neuro," to say that I have a hangnail and there's nothing wrong with me. With expectations that are low, I'm sure to not be disappointed!

Dr. Recruited listened to me when I said it wasn't a typical TM presentation but he didn't pay attention to the fact that I had a thoracic spine lesion in 2003 and no brain lesions, but ended up with two brain lesions in 2005. (Dr. Recruited only saw one, however, even though my MS specialist neuro in 2005 saw 2.)

So I'm going to ask Dr. Unknown about how it's clinically isolated syndrome when you have lesions disseminated in time and space (with attacks disseminated in time and space) too. Cuz I need that explained to me. Anyone ever hear of McDonald criteria, doc?????? <that's sarcasm and rhetorical cuz I know what they are>

And my neuropsych testing showed that I have cognitive deficits--those I complained of--but the neuropsych said that most people probably wouldn't notice them (still). <sigh> If only *I* didn't notice them. He also told me that he didn't have any good compensation strategies for me for the particular cognitive issues I had, which was ok.

So wish me luck for Wednesday. If Dr. Unknown says it's a hangnail and there's nothing wrong with me, then I think that I'm done with the docs at that facility. A friend of mine has already told me that if I end up with a third opinion that's other than I've gotten from 2005 on to come to Texas and see her neuro. I might just do that if that happens!
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Dxd RRMS 12/23,06, Copaxone 2/07 to 9/07 - Rebif 10/07 to 7/08, BAD flare with Transverse Myelitis & Pancreatitis.....,9/08 Pseudo Cyst!!!! and another TM attack. Started Tysabri 9/22/08 - 10/21 Allergic reaction to Tysabri, SSDI Approved 11/14!! Continued Ty 11/17 with a Pre-medicate. Solumedral 12/11-12/13 Ty #5 Jan 12th!
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"Thanks for this!" says:
dmplaura (12-01-2008), Gazelle (12-01-2008)