I've had 5x 7day awake treatments now and hope to have more. Unfortunately they only work while they're running now, with a little carried on into the following weeks, but the majority of my pain and problems return as they slow the dose down then stop it.

I'd love to be able to have ketamine in a daily form. I know of a few US RSDers that take it daily (in liquid form I think) and I've asked my pain specialist if we can have that, but it's not yet available in Australia. Which is crazy really, as we've had access to ketamine infusions (they were even pionerred here for RSD!) for far longer than other countries. I know I'd benefit from it if I could take it every day. I trialled methadone earlier this year, as it is similar to ketamine and we were hopeful it would help with my pain in the same way ketamine does, but it made me violently ill, so I reluctantly crossed that one off the list.

I still remain hopeful, though, that the NEXT ketamine infusion will work as well as my second one did- putting me in a form of remission for ten months. If it's worked that way once, it's gotta work again!

Oh, and I should add that I'm off the neurontin now. I found it wasn't helping after a while, so I lowered my dose and didn't even notice a difference. Even coming totally off it didn't increase my pain levels, which shows me it wasn't doing anything anymore. Frustrating, but at least I know now, rather than continuing to take it (and spend a ton of money on it- AUS$70 a fortnight) for any longer.

xx