Any parents out there with stories on how their kids got RSD and what did they do?

Very new to this, the more my husband and I read about this wonderful disease, the more we are worried that this is what our 11 yr old son has. Have 5 doctors who are clueless on why his pain is so severe and now waiting to see a nuerologist and pain managments specialist.

One nuerologist at a party mentioned that his symptoms sounded like RSD and we should look into it. Then found it on a note from his pediatric Orthopedic doctor to consult a ped nuerologist - and temp diagnosis was RSD.

So have been looking up as much information as we can find. Luckily, he does not have some of the symptoms. Unfortunately, he does have some of the symptoms. Seems like every week though, he gets another symptom. Past week its the pain is turing into burning. Oh - the pain is also constant - never ending.

So would love to hear from other parents - their stories and their ideas.

Happy Holidays
Crunch