Quote:
Originally Posted by EHorst99
Were you diagnosed with anything or was has it been "idiopathic" the whole time?
You're supplementing with B12... were your B12 levels low?
Thanks,
Ed
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I have alcoholic neuropathy
(as one of the causes)
Mine is
axonal sensory polyneuropathy
(of length dependent nature)
My
B12 was borderline at about
550-600 and now
it is in the
1200-1500 range. The original
B12 range
was probably a cause of the alcohol.
But my Sx were prior to the heavy alcohol.
But I was a musician and was playing in bars for many years of my adult life. My doc was mis-diagnosing my Sx for at least
5 years & I was
self medicating with
booze, before my
Sx were finally
Dx'd....... when I was hospitalized for pancreatitis in
1999. A
change in
docs and getting a
good neuro specialist in
PN, as well as these boards helped me find my way to
living with
PN.
Acceptance then
taking action, were my biggest hurdles. Once past these, I was on my way to finding the
proper treatment, meds, and supplements.