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Old 12-02-2008, 10:50 AM
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nide44 nide44 is offline
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Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
nide44 nide44 is offline
Senior Member
nide44's Avatar
 
Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
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Quote:
Originally Posted by EHorst99 View Post
Were you diagnosed with anything or was has it been "idiopathic" the whole time?
You're supplementing with B12... were your B12 levels low?
Thanks,
Ed
I have alcoholic neuropathy (as one of the causes)
Mine is axonal sensory polyneuropathy
(of length dependent nature)

My B12 was borderline at about 550-600 and now
it is in the 1200-1500 range. The original B12 range
was probably a cause of the alcohol.
But my Sx were prior to the heavy alcohol.
But I was a musician and was playing in bars for many years of my adult life. My doc was mis-diagnosing my Sx for at least 5 years & I was self medicating with booze, before my Sx were finally Dx'd....... when I was hospitalized for pancreatitis in 1999. A change in docs and getting a good neuro specialist in PN, as well as these boards helped me find my way to living with PN.
Acceptance then taking action, were my biggest hurdles. Once past these, I was on my way to finding the proper treatment, meds, and supplements.
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Bob B
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