View Single Post
Old 12-02-2008, 11:24 AM
GJZH's Avatar
GJZH GJZH is offline
Member
 
Join Date: Aug 2006
Location: PA
Posts: 289
15 yr Member
GJZH GJZH is offline
Member
GJZH's Avatar
 
Join Date: Aug 2006
Location: PA
Posts: 289
15 yr Member
Default

http://tarlovdisease.populus.org/rub/2



Foundation News Updates
Research Announcement
November 2008


The National Organization for Rare Disorders’ Medical Advisory Committee has announced that Anne Louise Oaklander, M.D., Ph.D will receive the Tarlov Cyst Disease Foundation’s grant for Tarlov cyst research.

Dr. Oaklander is an attending physician in Neurology and Neuropathology at the Massachusetts General Hospital and Associate Professor of Neurology at Harvard Medical School. She directs the Nerve Injury Unit, which she founded in 2002 at Massachusetts General Hospital, following her fellowships at Johns Hopkins. Dr. Oaklander works in the emerging field of nerve injury and neuropathic pain and is internationally recognized for her research profiled in Science and New Yorker magazines, as well as in print and broadcast news media.

We are excited about Dr. Oaklander's research with the Foundation's grant and hope that her project will put us one step closer to improved diagnosis and treatment outcomes for Tarlov Cyst Disease. Dr. Oaklander’s publications should help educate the medical community and public alike about the diagnosis and treatment of Tarlov cysts.

Tarlov Cyst Disease Foundation Board of Directors

The Researcher Selection Process:
Requests for research proposals were sent out in March 2008.

Initial Research Proposals were received in May 2008.

NORD's Medical Advisory Committee extended invitations for final proposals from the research grant applicants July 2008.

Full Research proposals were received September 8, 2008.

Medical Advisory Committee selected the researcher/grantee November 2008!
__________________
4/06 - Lumbar Fusion - L1, L2, L3, L4, L5, S1
Anterior with cages and Posterior with rods and screws.

8/17/05 - Cervical Fusion - C4-5, 5-6, 6-7 - Anterior and Posterior Fusion with plate in front and rods and screws in the rear - Corpectomy at C-4 and C-5 and microdisectomy at C6-7.

1/4/05 - Lumbar Laminectomy -L3, L4, L5, S1, S2 Obliteration of Tarlov Cyst at S2. Failed surgery!
GJZH is offline   Reply With QuoteReply With Quote