Welcome to NeuroTalk! I am so sorry that you are having all these problems. A short while ago I had a specialist try to hang a diagnosis of progressive neuralgia on me, but I went and did my homework, and when I came back with evidence that my symptoms didn't match the condition, she backed off and admitted that she had said what she did because it was the last thing she could think of. With Progressive Neuralgia there is no treatment, either, and I suffer from severe chronic pain at times as well. There was no way I was going to let them shrug me off as incurable, and tell me to make the most of my pain.

I keep pushing and pushing. I've seen 28 docs now and been to 8 hospitals, and even though I don't yet have a diagnosis, then at least I don't have a WRONG dianosis, which could be worse. I always do my homework on every condition and every med which they suggest to me. I did go to a pain management center a few years ago, and the top doctor there told me that if I let my other docs plant me in pain management, then no one at all would be looking for what was wrong with me. I'd just be out of their face, so to speak.

Some people have been diagnosed and do need pain management. But for others of us it's just a dead-end street. So be careful about letting them send you there. I wish you lots of luck in sorting out your troubles, Jess78. Lots of good feelings to you! luck!