Welcome to NeuroTalk! I'm very glad you dropped by. Wow! Thirty years is an awful long time to have the same condition. I've had mine for seven now, and I thought that was a lot! My illness began with abdominal spasms, but as it progressed, the spasms went away. It's been replaced with quite of few other things.
I don't even know where to begin in offering you advice about your illness, but I do know that there comes a point when accepting your illness as just another part of your life can bring you tremendous release of emotional pressure. You don't forget about it, or stop looking for a cure. You simply accept that it's time to start working around it for now, until it goes away. I've hardly ever met a person who doesn't like to discuss their illness to some degree with other people, and there are a lot of us here who don't mind listening.
But right now I am going to wish you all the luck I have in finding out what is causing your aggravating condition. All the best, Tyronie53!