went from mild nerve damage (I woke up one morning with a completley numbly hand and foot but not much attention was paid to symtoms) and being able to up walk 3 flights to my apartment to a wheeldhair in little over a year - and tests confirmed completely senosry loss... I have full body pn - presumed genetic - (no other explanation has been found and high dose ivig didnt help - had every test in the books and consistenent is the presentation of the damage - both large and small fiber loss, and severe nerve root loss) also autonomic nueropathy - leaving me unable to have any food - just a few liquid supplements (9 years now) - and heart complications that continue to worsen but are controlled for now with meds....... (all my bloodwork was fine during all of this)

We are all different - my docs at first thought no big deal - just a post viral infection.... so it sure does pay do do our own reserach!