Hi Rezmommy, welcome on board!
At the beginning (17 months ago) and apart from the hospitalization periods, I saw my neurologist every month, then every two months and now the next apointment is in three months…
Of course she (she is an EMG specialist and works in a hospital) said she would always be available on the phone, and that the hospital could take me on emergency, should it be necessary.
I should also say that I' m very fortunate (…) to have a neurologist nephew in Belgium (I'm belgian but living in France) who has a some experience with MG.
Take care and be patient,
Maurice.