Yes I know exactley what you are talking about. I'm sick and tired of being sick and tired. So much so that the other day, I went out into my tiny garden spead out some soil improver, blood and bone and promptley started to dig it into the sand, after about 10 minutes of full on digging raking etc my body just gave up, I staggered inside onto the lounge shaking and gasping for breath!! I'd had enough of not being able to just get out there and do what I want to!!!! I still find it so very frustrating even after 6years. I've now talked to myself sternly and said, little by little, as I dont want to end up in hospital or have my prednisolone increased!! So little by little over the last 10 days my garden has been planted with lots of herbs vegies and seeds, cant wait to start eating them.

Everyone who knows me knows I have mg, and they all react differently. Some tend to overcompensate, and try to wrap me in cottonwool(very frustrating), my really good friends just treat me like normal, and know I will say when I can't go out or dont have energy to do something. its a hard call, but you will find a way.

hope I've helped some and not just rambled on and on
redtail