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Old 12-03-2008, 10:49 PM
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JoeMac JoeMac is offline
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Join Date: Feb 2008
Location: Erie, Pa
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15 yr Member
JoeMac JoeMac is offline
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JoeMac's Avatar
 
Join Date: Feb 2008
Location: Erie, Pa
Posts: 107
15 yr Member
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Happy to hear that the 3rd time WAS the charm Gazelle! Great to hear, and it is SO refreshing to get a doc that actually LISTENS and makes you feel GOOD when you leave the office, it helps us SO much more when we know our docs are like that.........This disease is just TOO crazy and we really NEED that in a doctor.........

I am happy that you have finally found your guy.........


Joe



Quote:
Originally Posted by Gazelle View Post
This doc was great. He listened, was very personable, had a sense of humor, explained things well, and felt that without a doubt it was MS. So I have my dx back. (and he laughed when I told him at the end of the visit that I was afraid that I was going to go down there and end up with him telling me I had a hang nail)

I'm diseased officially (again)!!!!!
(hmm.... maybe the excited people emoticons are kind of strange considering what I'm happy about)

OH..... and I can sign up for a clinical trial with oral medication Fingolimod (FTY720)!
http://clinicaltrials.gov/ct2/show/N...US%3APA&rank=4


http://www.msclinicaltrials.com/index.html

I'm going to talk to the study coordinator. I'd been on Copaxone since 2005 when I got my dx from my second neuro (Dr. Flip Flop's partner). But the chance to try an oral medication, even knowing that it could turn out to be a placebo, is worth a shot (pun intended) as an alternative to daily injections which I hate.

Off to see about getting a "baseline" MRI done for him.
__________________
Dxd RRMS 12/23,06, Copaxone 2/07 to 9/07 - Rebif 10/07 to 7/08, BAD flare with Transverse Myelitis & Pancreatitis.....,9/08 Pseudo Cyst!!!! and another TM attack. Started Tysabri 9/22/08 - 10/21 Allergic reaction to Tysabri, SSDI Approved 11/14!! Continued Ty 11/17 with a Pre-medicate. Solumedral 12/11-12/13 Ty #5 Jan 12th!
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"Thanks for this!" says:
Gazelle (12-04-2008)