I've been trekking around Universal Studios with a three year old today and am exhausted but I wanted to respond to one of Boann's comments.

Concerning drug companies being naughty on a large scale and putting profits first. I'm afraid it's actually worse than that. It's not considered naughty. It's "what they do"....it's accepted.

I've talked to researchers at the table who have stated that with a little smile and a shoulder shrug as if to say, "boys will be boys.".

What differentiates this study is the results were NOT conclusive and too many researchers disagreed with the halt. They have been forced to find other sources and delivery methods for GDNF because Amgen owns the patent on BOTH and won't use it.

You don't just have to be a patient to understand the significance of this act. You have to be one who has had it long enough to be suffering. Even patients don't think they are worth the money spent if it isn't profitable.

Paula