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Old 12-04-2008, 04:50 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Such a cozy arrangement

And no messy patients about to stain the carpet.

Kind of eery how close this is to what I have been working on for the last year or so. Let's see...

Me: parkinsonsonline.org
MJFF: PD Online

Me: Open to researchers and practitioners of all types with a special emphasis on neuros, endocrinologists, immunologists, and gastros. Patients who show an ability to contribute, too.
MJFF: web community of scientists, industry professionals, grantmakers and financial investors <not a new idea in the bunch I bet>

Me: have built a beta version of a sophisticated and continuously updated knowledgebase of Parkinson's disease on a Wiki frame
MJFF: will work to build a sophisticated and continuously updated knowledgebase of Parkinson's disease <you have to wonder how wide the focus will be now, don't you?>

Me: Launch date could be tomorrow. I'm just trying to get it on a solid footing to impress 'em.
MJFF: launch date spring 2009 <maybe>

Does anyone know if MJF is even alive anymore?

Quote:
Originally Posted by paula_w View Post
Never thought i'd say this but this move by MJFF ****** me off. We've been struggling to discover a way to help these "professionals" who can't get it right and need us at the table. This is like a slap in the face. No patients allowed to join discussions.

paula

http://www.pdonlineresearch.org/
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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