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Old 12-04-2008, 08:55 PM
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fmichael fmichael is offline
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fmichael fmichael is offline
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Join Date: Sep 2006
Location: California
Posts: 1,239
15 yr Member
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Quote:
Originally Posted by GalenaFaolan View Post
I don't think RSD itself will EVER be listed as a cause of death on a death certificate. RSD isn't a fatal disorder by any means. No one will ever die from rsd no matter what some people out there might say. It does cause problems with the body, a lot of things we live with up our risk of heart attack, stroke, high blood pressure. The lack of circulation increases our risk of heart attack and stroke, high blood pressure also increases the risk, the pain increases the risk. If the rsd goes internal it can cause the heart to begin beating irregularly leading to a massive or even just a regular heart attack.

Having said that, I knew one woman who died about a year after I got rsd. She was in a group I was in. She was such a good person and I still miss her. She died of a massive heart attack brought on by rsd. She was one of the few who had it internally and she'd had a couple of heart attacks previously. Her cause of death was heart attack not rsd. The rsd didn't cause her death at all, her heart caused her death. I've known a handful who died in the 1st two years I had rsd due to suicide.

I didn't vote on the poll because it isn't as simple as a yes-no.

Hugs,

Karen
Dear Karen -

I beg to quibble ever so slightly. I got CRPS/RSD in 2001. Three years later, at age 51 and without any (other) risk factors, I had a 100% occlusion of the mid LAD artery in my heart. In fact, it took some time to get a diagnosis of my chest pains because I had had a "clean" thalium (chemically induced) stress test six months before, which my internist has all of his post 45 patients do every few years. That and a routine CT calcium calcification scan in or around 2002 put me at a "zero risk" of developing coronary artery disease (CAD). The only thing that saved my life was that I was at that point generally in good enough shape that I had excellent "collateral blood flow" across the heart. Consequently, I had only minimal damage, and most of that tissue turned out to have gone into suspended animation and has since come back, with the aid of a stent and a lifetime supply of Plavix.

I've since learned that one of the things that CRPS does in the brain is trigger the production of a number of proinflamatory cytokines, specifically a bad boy called Interleukin-6 (IL6), which longitudinal studies (available on request) have shown to be the single most effective predictor of death from CAD: basically, the higher the blood levels of IL6, the greater ease with which platlets and the like bind to artery walls.

Now, you say that the RSD caused your friend's death (for which I am truly sorry for you) but it did not kill her, the heart attack did.

We could be splitting hairs here on causality, but look at it this way, if it would be harder to buy life insurance because you have CRPS and the insurance companies knew - from an actuarial perspective - that people with CRPS tend to die somewhat more often because of heart attacks, it seems to me perfectly reasonable to say the the RSD killed them, abeit through a multi-step process. It's not just a matter of risk, or if it is, when it happened to me, it was the only risk facto I had. Adopting the lawyers' "but for" [it would not have happened] standard, the RSD did it.

Mike

Last edited by fmichael; 12-04-2008 at 10:54 PM. Reason: tone, age at time of MI
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