Hi Crunch,

You are very fortunate to find this group that is very caring with a lot of experience.
I'm so sorry your son is going thru this. I'm a mother, and it's me that has RSD/ 12 years now fulll body. I wasn't diagnosed for 4 years. So, you are in a great place getting an early diagnosis.

Yes, I also have heard of great facilities near you for children. There is a website called rsdrx.com puzzles lots of questions and answers. Early treatment for your son, is the best possible chance for remission. I don't agree with the idea of weaning off of pain medicine and getting back to school. Priority now is to get treatment, and yes, Physical therapy is very important,. Sleep is important, keeping calm and relaxed very important.Will the school work with you in homework at home, perhaps picking it up for him. The main thing is not getting additional injuries. Pain meds, anti-anxiety meds, help cope with the pain, and getting rest. School can catch up later, missing this important window of opportunity for remission won't wait. You never want that time to pass you up.

I've heard good things about the Cleveland Clinic and f michael mentioned.Definetly, get experienced anethesiologist for nerve block, should you decide to go that direction. Massage therapy and physical therapy helped me incredibly to get the use of both of my arms back. Had frozen shoulder in one and then the other. Then to one hand, had didn't recover.

Let us know how your son is doing after seeing a specialist in RSD. We really care. It hurts us adults especially to see young people get this. They have so much ahead of them that is new and exciting. To get that cut short is just a tragedy. Your in a great position for that not to happen.

Take care, Loretta