Quote:
Originally Posted by chasmo
Wow TEna, you are tough!!! 
Mike is in a unique situation. With his star status, he must be on guard against those who would use his notariety. How many of us have raised $140 million for research??? We all are forever in his debt.
My MDS told me that they spend half the day bringing up patients "to speed" when when patients are included. This severely impacts the time available for meaningful discussion. I think given that mindset, professionals do not "hear" us. DO I have an answer to this? No, I don't.
PErhaps if patient advocates could have scheduled question periods???
A perfect time for the professionals to take a "potty break"............. |
dear charlie,
I being born in the midwest -USA
actually in missouri our nickname is the "show me" state
their is a greatly humorous quote that fits -
so too this is my Answer!
I never did give anybody hell. I just told the truth and they thought it was hell.
Harry S. Truman