I understand the need for constraints on patient participation. One does not need a daily stream of newbies asking basic questions in that environment.

I also understand the need for patient involvement. One does not need a steady stream of neurologists asking the same questions from their limited perspectives. There are things I could ask that they would not.

A very valuable solution presents itself. There are a large number of people who have the dubious distinction of being in both worlds. A background in science and having PD as well. On our little forum alone, we have almost a dozen. Could there be a more valuable subset to serve as a bridge? And maybe not just for MJFF alone but available to any org or funding source that met its requirements?

It should be possible to put together a hundred such PWP with little trouble. And not just a limited number of disciplines either. We know from experience that a chemist can contribute as much as a neurologist although in a different area. That, in itself, is very valuable in broadening the base. Perhaps MJFF should fund such a group, but as a independent entity, and limit its membera to those researchers who either have PD themselves or who have a loved one who does.