I'll be waiting to hear what she tells you about it. Have you tried changing your sleeping arrangement(pillows) etc.. I found that since my ON has gotten so bad that I can't use the pillows I used to and had to switch to a semi-soft pillow. I used to use the cervical ones, but for some reason they aggravate the occipital nerves, which doesn't make any sense to me. Has your doctor mentioned any anticonvulsants?

Take care