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Old 12-06-2008, 07:54 AM
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Join Date: Jan 2008
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Quote:
Originally Posted by Desinie View Post
But how long is a sufficient trial before you feel like you gave it a good shot really? (I know any answer can just be opinion since there hasn't been any in depth trials.) I tried it for 3 months in 2005 and never noticed any improvements/symptom control, but was thinking of giving it another try and have a new script for it from my neuro for 3 mg. I tried for a 1.5 mg script ,but this was my response from my neuro.

"Whether LDN works and what dose of LDN is optimal is unclear. The theory is low-dose and it is unclear whether 3 or 4.r or for that matter 1.5 is best is not known. I suggest using the 3 mg and if you have no trouble with that consider increasing. but again there is not published data that LDN works."

And my response to my neuro, which I'm still awaiting a response to:

"I think there's no published data on LDN because the money is not there to go forth with the trials. There's no money to be made off LDN even if they find out it's a good and reliable treatment for MS,Chrohn's ,etc. I find that so incredibly sad as a former nurse. I'll try the 3mg ,but if 4.5 mg would work best for me I'd need to get an entirely new prescription for it. I was trying to avoid that by getting one prescription for 1.5 mg. "


Thanks!

As I understand it symptom improvement is a "perk" that some, but not all, experience. The main objective with LDN, I believe, is to slow progression and that can only be verified through MRI's at varying intervals throughout the years. Sx improvement is always good.....at least you feel like you're doing the right thing in taking LDN but not everyone gets that benefit. Someone correct me if I'm wrong....but that's my understanding of it.
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