I guess there's no need to repeat the fact that we all hate to see this monster disease claim a new victim. I'm glad you found your way here and I know you will find most helpful information and support from these fine folks. I assume you have read the stickies regarding "caring for someone with TN" - you may want to share it with your family if not already.

I will pray that you and others here will find some relief and be able to lead a normal life. My TN is a very mild case so far, and I have not taken any of the drugs you mentioned. I have only taken tegretol and only when I have an episode - which usually drugs me out for a day or two. I also know what you mean about others not understanding your disease because you don't "look" sick. My sister has suffered with RA for years and most the time she can get up and go with the best of us, but then other times she has to be carried to the bathroom.

Take care of yourself, Debbie and I will be thinking of you.

Rhonda