Quote:
Originally Posted by EE03
I'll be waiting to hear what she tells you about it. Have you tried changing your sleeping arrangement(pillows) etc.. I found that since my ON has gotten so bad that I can't use the pillows I used to and had to switch to a semi-soft pillow. I used to use the cervical ones, but for some reason they aggravate the occipital nerves, which doesn't make any sense to me. Has your doctor mentioned any anticonvulsants?
Take care 
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No she hasn't. It may be because in addition to the ON, I also have MS and am on drugs for that too. Believe me, it's complicated.
Right now I am not getting proper sleep. I have sleeping pills but am reluctant to take them constantly. Last night I was drifting in and out of sleep and my head was killing me.
You know, I can totally see how people in pain can end up addicted to painkillers and sleeping pills. ON certainly screws you over for sleep and the pain is just brutal.
I have 2 soft pillows. I tend to fold the top one in half, as I sleep on my face.
I switch out my fentenyl patch today so we'll see how that goes. SO far I am not impressed with it. It's not more helpful than the morphine and it's definately more expensive and not covered unless my doc files the papers saying I need to have it.
I head to the pain specialist on Thursday again this week-I pretty much have a standing appointment till Jan. when I have my lido drip trial.