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Old 12-08-2008, 09:40 AM
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prairiegirl prairiegirl is offline
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Join Date: Sep 2008
Location: Western Canada
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15 yr Member
prairiegirl prairiegirl is offline
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Join Date: Sep 2008
Location: Western Canada
Posts: 101
15 yr Member
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Quote:
Originally Posted by EE03 View Post
I'll be waiting to hear what she tells you about it. Have you tried changing your sleeping arrangement(pillows) etc.. I found that since my ON has gotten so bad that I can't use the pillows I used to and had to switch to a semi-soft pillow. I used to use the cervical ones, but for some reason they aggravate the occipital nerves, which doesn't make any sense to me. Has your doctor mentioned any anticonvulsants?

Take care
No she hasn't. It may be because in addition to the ON, I also have MS and am on drugs for that too. Believe me, it's complicated.

Right now I am not getting proper sleep. I have sleeping pills but am reluctant to take them constantly. Last night I was drifting in and out of sleep and my head was killing me.

You know, I can totally see how people in pain can end up addicted to painkillers and sleeping pills. ON certainly screws you over for sleep and the pain is just brutal.

I have 2 soft pillows. I tend to fold the top one in half, as I sleep on my face.

I switch out my fentenyl patch today so we'll see how that goes. SO far I am not impressed with it. It's not more helpful than the morphine and it's definately more expensive and not covered unless my doc files the papers saying I need to have it.

I head to the pain specialist on Thursday again this week-I pretty much have a standing appointment till Jan. when I have my lido drip trial.
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