Quote:
Originally Posted by Lucy
I know what you mean about the alone bit - I was like that until I found this site. I have been to our local brain injury coffee meeting and felt that the other few people were a lot worse than me and felt like I didn't fit in any where. I was the only one attempting to work in my existing employment still.
Being told that you look really good etc makes you feel even worse as your brain screams at you inside your head that it is so tired and hurts. I have repeatedly asked my specialists if they know anybody locally that I could meet who is similar to me - no luck - I just don't think they get how alone you feel. Last year I went to a concussion seminar run by Barry Willer (Canadian) - in the middle of it I had to go and have my afternoon sleep in my car. At the end I went and spoke to him and he said that there was nothing that could be done for me - it wasn't nice to hear that - I am forever hopeful of something.
Anyway the woman that is the local co ordinator for the TBI group was there and I spoke to her about who was still going to the coffee group - she mentioned one particular person and I repllied "but she is a lot worse than I am!" and she just looked at me oddly - at that moment I felt like jumping off the balcony as I thought "am I as bad as her or does she just think I am crazy?" I think that is when I first started to become depressed.
Lynlee
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Hi Lynlee,
Thanks for writing back, and sharing your personal experiences. I have gone to my local TBI support group meetings, but I certainly don't compare to their personal experiences. The people in my TBI group were in comas for months. They have awakened and thank God for every day of their life! That is
wonderful that they not only survived but personally grew from the experience. I am very happy for TBI survivors!
Being on the mild end of the spectrum seems to be a double-edged sword. Yes, we survived! We should be happy. We should be thankful for all that we have. Sympathy and understanding are often absent in professionals and friends - I only know a few people who truly understand the effects the TBI and surgery have had upon my life. It would be great if these people played a larger part of my life! But, that's not in the cards. Those who are a daily part of my life understand less of me than I do! Which is actually kind of bad, LOL!
Thank you for posting, take care!
Shez