I am definatley into research- I have written letters to Oprah, Dr Phil and Montel trying to get our disease known so we can raise money for research- I researched ketkamine for 2 years before I (unsuccessfully) tried. I went thru the HBO2 tx without success) I am constantly looking for stem cell information to no avail!
I considered joining the thelidimide study but decided against it as per my PMs advice. I am stuck and dont know what else I can do? Please let me know- I want out of this RSD as all of us do- just seems to be a dead end...Money for research should be a goal I think...Please dont stop giving us your information!

DebbieHub