Keri, what exactly is the claim with regard to HiCy? Is it hoped to affect disease progression, or relapse rates, or ??
As I explained in your other thread, having a relapse (or not) doesn't mean that the disease process hasn't slowed. What I am waiting for is a drug that claims to affect the DISEASE, not just one inconvenient component of the disease. While it is nice to not have as many relapses, if I still end up in the same position/condition I would otherwise have been in 10 - 15 yrs anyway, I don't care to take a boat-load of drugs just to avoid relapses.
It may be that this drug is working in some way, but only time will tell. I do not think you can judge it's effectiveness on having a relapse though.
You've tried the biggest guns; Tysabri and HiCy . . . so how about trying a itty bitty 4.5 mg pill of LDN now . . . ?
My points are there are still other options out there, so don't get too discouraged. Also that no matter what we take, it doesn't mean we won't have ANY relapses . . . they haven't found a cure (especially for ALL aspects of this disease) as it is just too misunderstood and complex of a disease yet.
Cherie
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