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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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Thank you everyone. I'm trying to be "okay" right now - but it's SO hard. The word devastated doesn't even begin to cover it.
I sent an email to my doc at Hopkins and he wrote back earlier today. He said I had options and not to worry. As of now, I think I will re-dose with the HiCy again and maybe they will make modifications. I'm not a doctor and I don't play one on tv....but, eh, I have some thoughts. LOL
I will be sending them a copy of the MRI tomorrow and then faxing the full report to them as soon as it's written up. I will be going out to see them in January.
I'm not giving up....at least not yet. I'm more of a fighter than I ever thought I'd be - this disease has taught me that much.
Think I will tell the doctor that I tolerated the first round of HiCy with too much ease - this time I want to be sick as a dog, on death's door, puking up my innards - and heck, I'd like to lose a few pounds this time (I gained weight last time!).... Then I will know I got the right dosing!! 
My body and mind are definitely not cooperating with me. Put up the Xmas tree - and managed to drop 5 glass ornaments - all of which broke. That was after I broke two glass dishes earlier. Very sad. I thought I was passed all of this. One hand is very weak - and the "good" hand has the IV line hanging out of it - so it isn't usable at the moment.
I'm really for 2008 to be over!!
~Keri
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