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Old 12-15-2008, 04:34 AM
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Join Date: Nov 2007
Location: France
Posts: 346
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neutro neutro is offline
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Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
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Hi miachris2,
I' m so sorry to read about your story, MG is definitely a sly illness.
It is a good idea to try Imuran but unfortunately, it may take a while (several months) to act.
Plasmapheresis, as Erinhermes suggested, might also be an alternative, but the cost should be about the same as IVIG's (at least in France, it is…)
The problem with MG treatments is to understand their action: Mestinon is like Aspirin, it masks the symptoms but doesn't cure, IvIG and plasmapheresis have a short onset of action (days) but their effect doesn't last beyond some weeks, maybe a month, they do not attack the illness cause, so they have to be repeated regularly, that's why they are not normally part of a base treatment.
Steroids are quick in action and generally effective but side effects may be hard to cope with, immunodepressors may also be effective but they are slow to act, some require up to one (or two) years…
You wrote you had problems when you tried steroids, what was the dosage you started with, and under what conditions?
I hope your new GP and neuro will find something which will help you.
Maurice.
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