because mine was progressing steadily and occuring at the same time as developing asthma and chronic respiratory infections, i felt very motivated to learn what i could since i had no idea where the whole thing was heading. I had never heard of peripheral neuropathy. I knew i had it from reading on the net and visiting the " other" site before i was diagnosed by a doctor. To be fair to the doctor, he did diagnose me quickly but then told me i needed to go to get a nerve biopsy which would have been a big mistake. Anyway i think motivation promoted by you being the one who ails goes a long way in education of a disease or condition.