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Old 12-15-2008, 06:50 PM
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jeanb jeanb is offline
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Join Date: Aug 2006
Location: sonoran desert
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15 yr Member
jeanb jeanb is offline
Senior Member
jeanb's Avatar
 
Join Date: Aug 2006
Location: sonoran desert
Posts: 1,352
15 yr Member
Blush interesting

When I was in the CEP-1347 clinical trial, I was in an email group of about 12 others in the trial. We shared our experiences, our side effects, visits to study centers, doctors, and overall how well we were doing etc etc.

Several of my correspondents were doing VERY well - their symptoms hadn't worsened - and they hadn't had to start on pd meds. I admit that I envied them - and I hoped when the trial ended I would get the GOOD dose - the dose they were on.

you can see where this is heading...


When the trial was unblinded, it turned out THEY had been getting the placebo. And I had gotten the lowest dose - the group that did the worst (go figure).
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This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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