The hard way? It's a matter of self-defence, from ignorant doctors, bad testing, outdated knowledges in the professional fields and all that.
Neurologists and all docs for that matter have to keep up with hundreds or thousands of medical issues! Neuros alone have well over a couple of hundred conditions connected to neuropathies alone!
Good, that is, really GOOD docs actually like the fact that you are more aware of what you have and what all has to be done about it than most.
But...a word of caution? Most of what we all cite here are MEDICAL Papers, news and the like so say you've learned from this medical paper or that medical web site about X, Y or Z... Why? Because we here don't practice medicine. We simply share what we've learned with you. If you just say: 'I got it from a web site', you could be written off as a looney or worse. Last thing in the world we all want!
Self defence, self preservation or whatever... we share and do what we can to understand what all is happening to us and to get by. No one should have to reinvent the wheel in this day and age. People here are super kind and patient as a rule also on how to find things.
I hope this helps you to learn as much as you can handle and then learn even more about it all! Keep at it and you will for sure. 's - j