Curious,
I dvr'd the show. I really don't know whether it is on utube or not. I do hope you get to see it. I understand what Ada was saying. The forum that it was presented in may have not been to optimal, but the fact remains that it was presented. Also, I think I would have done it just for the mention of RSD. I thought Ashlee was brave to go through with what it took to make it happen and I applaud her. Her commitment to helping RSD with her charity work is a great show of her character as well. Curious, if you find it on utube I think it would be great to post. I would love to see a show like we saw with mystery diagnosis and Zoe with RSD. Maybe next time there will be more. I am always thankful and try to look at the cup half full as much as I can.
Ada, I really do understand I have had this **** since 1989 and I wish I didn't have to explain it everytime someone asked why I have to do something and be an exception to the rule! Or why I can't do this or be here....or "you look fine to me". But, it is what it is and I just live the best life I can. Let's keep trying to "get the word out there". We will have our day. Utube now has RSD patients and we will move on from there. Ada, keep warm. It is snowing in Northern New Mexico now.
Hopefully I can see you in May when I visit the Springs! Love to you..Diana