Hey Mark

you have no idea how much I empathise with your statements!!!! I have had that issue so many times...... seriously I;ve been diagnosed with MS by several neuros - because with me the symptoms I have are very similar to MS (paralysis sort of thing etc). Therefore tuning forks etc - neuro's NEVER get when you say you have alloydinia - BUT - I have had great success with if you touch me I will bite you..... though usually you get offered a place in anger management.... (or discharged from physio).. even worse was when a neuro decided to see if I could stand up so picked me up and let go... then wondered why I was screaming in agony on the floor and didn't magically be able to stand up!!! grrr

anyway huge hugs and hope you feel better soon!!!!

do you never get to the point I reach which is to be honest I don't care whats wrong with me I just want it to STOP hurting cos I can't handle it anymore. I don't care my notes say muscular dystrophy, MS, RSD, fibro, HMS, central pain syndrome, ALS, and all that crap oh and secondary generalised dystonia, tachycardia, orthostatic hypertension, osteoporosis and lychomplanas...

I think thats most of the list!

anyway - seriosuyl - offer to bite them and they soon back off!!

lots of love, hugs and false teeth

Rosie xxxxxxxxxxxx