I've learnt a lot of useful information and located other useful sites from here.

I'm really very grateful to those knowledgeable and caring people who post on here and I only wish I'd found this site before.

My health experiences over the years have taught me not to take any one piece of information on its own as being correct. Always try and cross check it as much as possible, even (and perhaps especially) when it comes from a doctor or consultant.

I haven't yet got all the answers I need to help me understand my condition and symptoms and how to address them. But I will keep asking questions and doing research here and elsewhere rather than putting all my faith in the medics.