Thread: Crps????
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Old 12-17-2008, 05:26 PM
sbvcrn sbvcrn is offline
Junior Member
 
Join Date: Jun 2008
Posts: 58
15 yr Member
sbvcrn sbvcrn is offline
Junior Member
 
Join Date: Jun 2008
Posts: 58
15 yr Member
Default Crps????

Hello neuro talk community members
I am grasping at straws here so here goes. Four years ago I was in an auto accident (rear ended) and jerked my neck plus hit my head on the left window of my car quite hard...had an egg sized hematoma. Never lost consciousness or anything like that. The kids that hit me drove off and I was a hit and run. Anyway, had some neck tenderness that night but that was all. Did not go to the doctor as thought I was okay (it was low speed impact). Several days later neck really started hurting so went to ER and had a cervical spine series which showed degenerative disease (I was 61), some osteocytes, some bulging discs but "nothing serious". Sent to physical therapy and after about a month developed tilting to the right and neck spasms. Insisted on seeing a neurologist, had a brain MRI and Neck MRI and diagnosed with cervical dystonia/torticollis. Now receive Botox injections in my neck every three months for this (no, not cosmetic although one side looks better than the other). Approximate 2 years ago started with burning feet, legs, hands and arms. Has progressed and I am miserable. Have seen a peripheral neuropathy specialist (neurologist) and ALL tests for peripheral neuropathy have been negative including EMG, NCV, skin biopsy (supposedly the gold standard for this condition), glucose tolerance, heavy metals, B12, etc...what I feel was an excellent workup but still no answers. I look find but am really uncomfortable (allodynia, hyperesthesias, burning, cold areas in my arms and legs that feel like they are burning but cold to the touch). I am a member of NSTA (National Spasmodic Torticollis Assn) and in their recent quarterly bulletin they spoke of a physician, Dr.Mark Cooper, a biologist and medical researcher at the University of Washington in Seattle who wanted to bring attention to our members of CRPS...and a possible correlation to the cervical dystonia/torticollis. Does this sound like a possibility? I am not getting any relief with the intense burning I feel, and the inability to wear many types of fabrics I used to be able to wear. I am going to attempt to contack Dr. Cooper and see if I can find more information. In the meantime what type of neurologist would one see for this. My local neurologist, the peripheral neuropathy neurologist and the Movement Disorder Specialist...all have never even mentioned this condition to me and yet a lot of what I read seems to be related to what I have. Please, any thoughts. Thank you.
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