Cat...
so sorry to hear you've gone thru so much and that suffering continues, worse now with med changes.

Hope the Lyrica helps.... i couldn't tolerate it nor most of the other meds tried.
does DR--TN specialist--know how much your pain has increased since Tegretol has been decreased??

have u read thru the stickies, Links above for more info about TN?
Many have shared tips, what helps them.

My heart & prayers go out to You--
do understand --I've wanted to do more than scream....

Pray you get some relief soon