I haven't had the SCS implanted as I am only a child and my Pain Management Doctor doesn't agree on implanting SCS's until you are at least 16 years old. It is something that I would look into in the future though if I have tried everything else and things don't seem to be getting any better. They don't seem to implant as many SCS's over here in the UK as they do in the US - ever here, the SCS's are thought to be a last resort.

I have spoken to others that have had the SCS and it's a very mixed response. Some people are doing great whilst others, the surgery caused a spread of their symptoms and made them worse or it didn't work at all. I've spoken to a lady who had an SCS implanted whilst she had RSD just in her left arm and it spread full body following the surgery. I have spoken to several others though that say that they couldn't live without it and that it has helped them so much!!

I think if I was you, I would weigh up the pro's and con's before agreeing to have any surgery. Usually if the trial doesn't work for you, then the surgery wont either.

I wish you the very best of luck with the rest of the trial and please keep us updated when you can!!