Quote:
Originally Posted by dllfo
I have trouble with titles, but I am trying to ask those of you who are more experienced with PN than myself -- does PN strike for 15-30 minutes, then go away?
In the last couple of months I have had sudden, severe pain hit the back of my foot, the bridge on top, my ankle area, my hands (especially the left hand), I have a "tooth ache" about 1/3 of the time (dentist took xrays, some weird machine that circled my head, he fixed my "bite" and so on, pain is still there) -- and the pain can be the upper or lower left side of my mouth, rib cage hurts at times, right thigh muscle hurts ....
When these pains strike in my feet, I can't bear to put weight on the afflicted foot. Too painful. I use my forearm crutch or crawl to the couch to lay down.
My left hand hurts a lot. My little finger feels like it is broken. Any touch sets off a very severe pain surge. I can't even tear a sugar packet in two when at a restaurant, it hurts too much to pull the paper apart. AND my left hand feels weak at the same time.
I feel like I need to use the bathroom a LOT. Never mind if I just had a normal BM, my system tells me to go again. It is so bad I now take my laptop with me.
Thanks to MRSD's help, and a half mg of Mirapex, my RLS seems to be contained and not bothering me now. Thank You Lord for that.
With over a hundred different PNs, I don't see how they can narrow it down. Maybe one medication works on most PN problems? It is 2:31am and I haven't been to sleep yet. I woke up yesterday at around 4am. At night, I wake up in pain. My rib cage one night, my
left hand another night, my neck hurt another night. PN? Who knows.
So do any of you have pains that don't last all day? 30 minutes? A tooth ache that is not a tooth ache? When I feel an unusual pain now my first thought is, "Is THIS PN?"
A year ago I would have attributed it to old age. I am not in pain all the time, just enough of the time I don't know what to expect each day. Strange disease.
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About you teeth pain. Why not try a sensodyne toothpaste. Don't laugh. I know what you're talking about. 19 years ago I had a back tooth (deep cavity) filled.
Well, after that, any time the weather changes, or it rains, I'm in hell. I ran to the dentist (and for me to run to a dentist, you gotta know I'm dying), and I said "pull this tooth it's driving me crazy". He took x-rays. found absolutely nothing. I do have TMJ by the way. He said "well, TMJ can manifest in a toothache but I can't find anything wrong with you.
So (and this was 19 years ago). 1995. I'll never forget that year. Everything went wrong in my life. But not to digress.
The dentist gave me antibiotics (just in case). And in 5 days, the pain went away. I didn't connect the weather thing. I just knew the pain went away and I felt fine. So the next time it happened I phoned the dentist and said "the back tooth is starting up again, can I have a prescription for the same antibiotics?" He said "fine". So I went that route (again, never noticing the weather.
So when it happened a few months later, I went to another dentist demanding that he PULL THAT BACK TOOTH. Again with the x-rays and again he found nothing. Then my gums began to get sensitive (AND THAT'S WHEN I DISCOVERED THE WEATHER CHANGING.)
I began brushing with de-sensitizing toothpastes. Made a world of difference.
Oh, and this is interesting. I once had the same pain in the back of my mouth on the other side. But it couldn't be a tooth-ache because I had no tooth in the back on the other side. I said "what the heck is going on"? It was raining outside.
That's when it all came together. I remember asking a dentist. Could his be inflammation? and he shrugged. See, they don't know it ALL, now do they? Sometimes we have to come to our own conclusions.
And I do have neuropathy (well-controlled by Methyl B-12). I'm a diabetic.
Now I've been checked. I have no sign of diabetes in my mouth, in my eyes, etc.
So whatever happens when it's damp outside, well, who knows.
So try brushing with some de-sensitizing toothpastes. Keep doing the hot compresses thing. You might never find out WHY this is happening. You probably have absolutely nothing wrong with your teeth but it's a nightmare, this I know.
I'll never forget what else happened to me in 1995. I got Bells Palsy. Oh m god, the pain in the nerves on the left side of my face, well, that pain did me in for 2 weeks. Then it went away. I did the hot compresses then too.
I'm lucky, I only have a lowered eyebrow as a reminder that I have bells palsy. I have a friend who has an eyelid that reminds her every day that she had Bells Palsy.
So you take care, try the toothpaste and try and jot down if you get any flareups and if it's weather related.
That's how I determined my flare-ups.
Melody