Quote:
Originally Posted by legzzalot
You know I love how all of these articles I am finding online all refer to numbness tingling, pins and needles as being the number 1 symptom with MS yet, the doctors and writers all seem to think it is a harmless or benign symptom.
Stumbling around and trying not to look like I have been drinking and attempting to feel the pedals when I drive is not something I would consider to be harmless or benign. Feeling like my leg is on fire one minute and completely numb the next is far from what I consider to be harmless.
I did find out from my reading that aside from IVSM that amytriptoline seems to be helpful and ironically I am taking 2 of those at night to help me sleep.
Is it just me or are our doctors full of useless information?
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I don't think it is so much that they look at the numbness as "benign" as that they view it as mostly untreatable.
The numbness (and other sensory symptoms) come from spinal lesions, and it is my experience that spinal lesions are just going to do whatever they *&% well please, no matter what you use to treat them (EXCEPT if they are caused by treatable infection). Steroids will sometimes to take down the inflammation during a flare . . . at least momentarily . . . but the symptoms ALWAYS seem to come back anyway, to "finish the job".
I don't think this is necessarily true with ON or other brain inflammation, but it sure seems to be with spinal lesion inflammation. Anyway, I think this is why they often do not offer treatment for "sensory symptoms" . . . and that is what makes it seem like they don't take it as seriously. They do, and in fact are fully aware that spinal inflammation is probably some of the most dangerous we can encounter.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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