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Old 12-24-2008, 11:58 AM
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
Default Great idea, how to present it to those that make the decisions?

This is a fabulous idea! Why in the world do they not already do this in clinical trials? They screen the heck out of folks wanting to get DBS, probably turning more away than they accept for this procedure...they have so MUCH information about every clinical trial participant that this would be fairly easy to match positive responses to the trial with symptoms and manifestations...of course that placebo factor could be a tad complicating, but surely they could account for that somehow. Patientslikeme.com has a fairly comprehensive grid of symptoms they could easily take and expand on, and then review each candidates medical records (which they probably do already) to find subsets of PD best suited to this procedure/drug or that.

I have no idea how or who or where one would go to present this idea, but given that spheramine and ceregene both got nixed this year, and we KNOW sole people were really helped by these, the time seems so perfect. Why shelve those therapies when they did help some people? They should know by now that there is not going to be a "one pill fits all" with PD, different people will respond better to different things. Hey, kind of like we already have now with the myriad of statins, anti-depressants, blood-pressure, etc. medications on the marktet. Why should PD be any different?
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