Welcome to NT, Dennise. I know how frustrating it is, just hang in there.

I agree with the medical journal. I started one about ten years ago, and it's really come in handy both for me and my docs. I saved all the old ones, and now have a little spiral notebook in my purse with med info from 2007 and 2008.

I write a meds list and re-write it every time there's a change. That's the thing that comes in the most handiest of all.

I have a page for each doctor visit, writing down things I want to mention and questions I need to ask, followed by a page of instructions, results, etc. of that visit.

I also write down all tests, scans, etc. with the dates and results.

I was diagnosed with MS in the early 1990's, and it took two years for me to get a diagnosis. It began with numbness along the entire right-hand side of my body. However, in my 20's I started falling. Not often, but enough to make me feel really clumsy.

Again, welcome. I look forward to reading your posts.