Hi Everybody,

This is just a combination whine and also question... Do you find yourselves being very sensitive or even defensive about your lack of energy due to the dreaded MS?

I feel frustrated if somebody even hints that I can be doing more than I am, because I look pretty normal, but I have the deadening fatigue all the time.

For instance, this morning I got up and sat at the computer playing a mindless game, waiting until I could eat and take my pills. (I have to take a Nexium when I get up and can't eat or drink anything for an hour afterward.) Rocky, our kitty was whining for someone to play with him since DH and I had both slept until 9:30am. I asked DH to play with him, and DH teased that Mommy would do it but I'm wasting time playing silly games. (That hit a nerve.)

I reminded DH that I can't get up and start drinking coffee like he can, etc...

I thought about it then and I haven't had a vegging day for at least a few weeks! Then I reminded DH about that. Even he forgets that I have the MS fatigue.

I finally get to eat in the morning then take my pills. Many days I can take a Provigil to keep me awake, but if I've overdone it I still sit most of the day. I make myself exercise two or three times a week (use it or lose it you know).

I'm so sensitive about this I think because I used to run circles around everybody elseI know, now I veg out a lot of the time and just try to stay awake and get some things done each day.

So... does anybody have some cheese to go with my whine?