Hi Wiz
I totally agree with you and all the others above who have shared their stories. I think fatigue is the worst symptom and the hardest to manage.

They say exercise or spread your time around the whole day, or don't use up all your energy in the first 4 hours, bank it. Well they can say all they want, even these MS experts because they haven't a clue what the true MS fatigue feels like, only described to them.

In the past I was a Super-Mom too. I did everything, including working and taking care of the house, kids and shopping. My DH did work a lot of hours so people got so used to me doing it all.

Well, now I can't, and those that knew me, including my kids, just don't get it. I say I can't, I am sorry, maybe tomorrow. They say, but Mom I'm tired too.

Well tired, and totally exhausted, our two different animals. I feel tired when I get out of bed some days. I'm exhausted in a few hours. Sure I could nap, but it just gives me a few more hours of energy and people wonder why a healthy looking person, not 80 years old, has to nap to get through the day.

Wiz, in a way I feel mad and guilty too. My DH is healthy and just itching to go out and do this or go here and there.. and I can't. I haven't his energy. I tell him go for your bike ride, I can't balance anymore. He can go miles. I think I hold him back.

So I have a double-edge sword feeling. One, that no one has a clue to what fatigue with MS REALLY is like, and two, that I am holding back a very active DH and Family who want me to share their activities and I can't.

Okay Wiz, I made this my whine too. Pass the cheese and crackers please sweetie. Heavy on the whine.
Lady

edited for dumb things.