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Old 12-27-2008, 04:26 PM
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Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
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tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
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Wiz, fatigue and pain are the two most common complaints I have. Pain causes more fatigue if I don't get a handle on it. But that's a different kind of fatigue, it just plain wears me out.

I take provigil every day and drink a lot of coffee. It still doesn't get me through the day the way I want, but oh well, whatever. It's the way it is and there's nothing I can do about it.

I used to take 400mg of provigil and would have that afternoon crash. I backed off to 200mg and don't have that afternoon crash and feel better but still deal with the fatigue at the same level. I don't get enough sleep at night but there is nothing I can do about it. It's what it is. Period.

So, I deal. If others don't, that's their problem.

I have learned to ignore what I can't get done around the house. I have a fully retired DH who has lots of free time. If he wants it done, he can do it. We have this joke about dust in the house. I am 5'4", he is 6'. He used to complain about dust on the top of the refrigerator. I told him I can't see it. If it bothers him, clean it. Same with the blades on the fans. I cannot see the tops. If it bothers him, clean it.

He is slowly, after 33 years, learning that I am not his mother. I don't pick up his dirty laundry, I no longer DO his laundry. If he wants clean clothes, he can do the wash. I am lucky if I can get my own done these days. I work full time, he doesn't. He plays with his friends at the Model Railroad Club.

So, yes, Wiz, you are not alone. You are a member a very exclusive club. Feel honored.
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Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
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