Quote:
Originally Posted by joellelee2000
Hi everybody! Well, I have some not so great news.  . Although my mri latest mri is stable, I've decided to stop Ty. I've been getting worsening headaches (disabling pain, I guess equivalent to a migraine) immediately after each infusion even though I take the Tylenol and Claritin before. They last for more than a day. I also get bodyaches, chills, and a low-grade fever. After discussing this with my neuro and my dh, I've decided to stop after my 10th infusion. I hope I'm making the right decision. ARGH!! I'm just so pssd off that these dam drugs keep failing me in one way or another! Thanks for listening. |
While I am not on Ty at the moment, I know exactly what u are talking about. Ty weakens your immune system as do all other approved MS meds. I can't say if u had a reaction to TY or if it weaken you (as in my case). I did not have many headaches, but was ill 80 to 90% of the time I was on Ty. About 1-2 visits a mo to the GP for drugs. For me it was worth it. Quality of life was low, but my MS become stable. The illness was kind of like a 2yr old who caught everything. I'm sever MS so I continued the med. I understand your decision to leave and wish you well. Just wanted u to know there are others out there somewhat like you.XOXO