rosie iam so sorry that you are having a horrible time i am like you 27 rsd for 11 yrs and it full body like yours organs eyes everywhere i dont have dystonis but slue of other things thanks to rsd. i have been having horrible problems since the beggining of the month w/ rsd had to have surgery appendix almost ruptured had no choice and now rsd is horrible .please try to look forwrd it does get better at least less than what it is now . im sorry that its so hard right i will think of you and keep you in my prayers
stay strong. one other question have you ever tried fentnly for your pain i cant take morphine due to being allergic. iahve a pump like morphine but fentnly in it.. it takes alot of it but it helps