Pete, I wish I had some words of wisdom . . . and trust me, I'm not usually at a loss for 'something' to say. I am when it comes to pain though.

I have had that level of pain, but for no longer than 3 months at a time, at full intensity. I was beside myself, and completely desperate, so I empathize with you.

What about a pain management clinic? If you have already tried that, try another ... and another ... and another!! I know, easier said then done.

I am still not sure "what" specifically is causing your pain though? Is it spasticity, or neuropathic, or muscle, or ???

Cherie