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Old 12-29-2008, 08:43 AM
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
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ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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I'm sorry that you are dealing with all of this Wiz and hope you feel better real soon.

I don't have MS but have CRPS (Complex Regional Pain Syndrome) and possible Fibromyalgia and one of the main symptoms of both of those conditions if lack of energy and exhaustion.

When I am feeling really tired and exhausted, I often feel like you and lash out at anyone who says something. They might be trying to say something to help me but most of the time, I think that they are doing it just to annoy me. My mum understands my illness thankfully but my dad doesn't and he is forever telling me, "If I just got out more" that I would feel that way but it just doesn't work that way and it is often too much for me to get ready to go out!! My dad and other relatives are forever complaining at me for not going out and it REALLY annoys me and gets me so angry and aggitated and I often can't control myself and just end up saying something to them!!! I honestly think that they will never know what MS or my illness is like unless they have it themselves.

My nanan had Progressive MS and she was the same as me, just couldn't go out as it was too much for her (she was wheelchair bound) and people always used to complain at her or used to say that she wasn't trying hard enough to overcome the MS!!!!

I'm not sure if this applies for MS as when my nanan had it there wasn't much research but when I spoke to my doctor about my illness (CRPS), he told me that Neurological conditions often affect the Limbic part of the brain and that is why we often feel tired and angry. I mentioned it to my dad but he still doesn't "get it" and it really frustrates me!!

Please know that you aren't alone and we are all here for you because we DO understand!
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"Thanks for this!" says:
Desinie (12-29-2008), ewizabeth (12-29-2008), soxmom (12-29-2008)