Hi, Judy. Sorry to hear about your troubles!

Because of my MS I suffer the same symptom, but not always as severe as yours.
I agree with Sally, see an urologist. I had an urodynamics (sp) procedure done which showed my bladder wasn't emptying completely. The doctor prescribed a medication that helps the bladder relax and empty completely so I hardly ever have a leakage problem.
As you know, everyone is different and maybe after seeing an urologist you will find an answer that will help you.