Quote:
Originally Posted by dllfo
WHY are you falling asleep?
Are you on opiates?
What are your pulse ox levels? NOT at the doctor's office, but at home and at work.
When you fall asleep, are you ever moving around? Narcolepsy comes to mind, but if you are like me (when it happens to me) I am sitting, usually listening to someone. Embarrassing, but after I explain my detox off morphine they understand. In fact, my wife and a friend who is an RN have had to shake me, yell at me for up to 40 minutes and I still did not wake up. BUT I have severe respiratory problems that, God willing, you don't have.
Are your fingernails blue when you wake up?
you have the money or good insurance, they can check your oxygen levels for a 24 hour period. Or you can shop around, like I did, and buy something like the SPO 7500, which records your oxygen levels for a period of time. They also provide software. The down side is they require batteries as there is not an AC power source.
Provigil caused me some problems, so I quit it. Also, while at the National Jewish Hospital in Denver, CO last summer, they did an "echocardiagram" with agitated saline and found I needed a PFO. That was why my pulse ox levels were in the low 80s.
Good luck with it.
|
Thanks so much for the info. I did decide to seek a 2nd opinion and was told that the prior sleep studies were done incorrectly( didn't go off anti-depressents prior to test) and that perhaps the real problem was Narcolepsy. I had 2nd sleep studies done and I have Narcolepsy and 2 more sleep disorders. The easiest one to fix is the breathing disorder that you told me about. It was apparent on the first test but not picked up by the first doctor.
This forum is wonderful because we can share stories and provoke thought to seek other answers to our problems.
I wish you the best with your illness and sincerely thank you for the help in dx my illness and getting the right treatment for it.
