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Old 12-31-2008, 08:52 PM
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GalenaFaolan GalenaFaolan is offline
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Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
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GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
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I only take 2 meds, baclofen for the jerking and muscle spasms,10mg 3 x's a day and vicodin 10mg 4 x's a day. It does well enough most of the time. I took 7.5mg for just over 2 years and will stay on 10mg as long as I can. If I switch to percocet then I'll have to go to the doc every month and I really can't afford that. Right now it's only once every 3 months.

I tried neurontin and it turned me into a monster,quite literally. I tried cymbalta and it gave me sharp,stabbing,shooting pain in my stomach. I just quit taking lyrica because the only reason I took it was to help or stop the numbness in my legs and instead it made it 10 x's worse!! Thankfully the worse part wasn't permanent and I've now gone back to my "normal" numbness. When I was on wc the neuro I saw put me on the duragesic patch for awhile and it made me feel as though I didn't even have rsd at all. It worked great, but I also felt very sick all the time and I couldn't take that,plus I was going to settle out and there's no way on earth I could afford to buy them on my own.

Everyone is different when it comes to how they perceive pain. My 3 or 4 could be your 8 or 9. So, the meds we take that "help" our pain a bit will be all over the map as well. As Lori Lee said, you have to find the combo that works for you. It really is a trial and error thing. I wish you lots of luck in getting some pain relief very soon!! This is a big reason I think that docs don't want to treat us. It takes too much meds and nothing they do will make us "better", they don't want the hassle. I sincerely hope your doc will listen and try to find the ones that will give you peace.

Hugs,

Karen
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Living, loving and laughing with RSD for 14 years and counting.
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